Fierce rare disease advocates and friends Avery Roberts and Kelly Berger join Alycia to spotlight congenital muscular dystrophy (CMD)—from Capitol Hill policy fights to artistic breakthroughs and accessible travel adventures. They unpack Medicaid’s lifesaving role, misdiagnosis challenges, breathing support needs, and why authentic disability representation on stage and screen matters. Hear how advocacy, dance, and 40-state road trips fuel community, pride, and action ahead of the ADA’s 35th anniversary milestone.
