Beyond Diagnoses: Congenital Muscular Dystrophy from Capitol Hill to Center Stage

In this episode of ‘Pushing Forward with Alycia,’ host Alycia Anderson interviews Avery Roberts and Kelly Berger, two formidable advocates living with congenital muscular dystrophy (CMD). They discuss their journeys in advocacy, the challenges of living with CMD, and the significant role Medicaid plays in their lives. They also touch on the importance of disability representation in media and the arts, with Avery sharing her experience as the first wheelchair user to perform at Radio City Music Hall. Kelly discusses her passion for travel and mentorship within the disability community. The episode concludes with insights into the Cure CMD organization and the upcoming conference in Philadelphia, focusing on education, community, and research updates for congenital muscle diseases.

A Quote from Avery

In terms of people who are outside of the disability community, meet me outside of the box.

~ Avery Roberts

A Quote from Kelly

Don’t stop fighting. It’s gonna be hard. It’s not easy. Don’t let anybody diminish your needs. Just don’t stop fighting.

~ Kelly Berger

Deep Dives from This Episode

Episode Flow & Milestones

Connect with Kelly Berger

Connect with Avery Roberts

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Stay tuned for more inspiring conversations on Pushing Forward with Alycia. Open hearts, clear paths. Let’s go.