Rare disease advocate Lynsey Chediak shares her powerful journey from lifelong patient to healthcare policy leader. Born with a rare skeletal condition, Lynsey has endured dozens of surgeries while navigating a healthcare system not designed for rare disease patients. In this conversation, she and Alycia explore resilience, advocacy, medical barriers, and why patient voices must shape the future of healthcare. Lynsey’s story is a powerful reminder that lived experience can drive real systemic change.
